The Randles Boys Foundation is a non-profit organization established to raise funds and awareness to help find a cure for Cystic Fibrosis. Our motivation and inspiration comes from Colin and Sean Randles. Both boys may be young in years but their everyday battle with CF has brought about a new sense of urgency for their family and friends.
Cystic Fibrosis is an inherited chronic disease that affects the lungs and digestive systems of about 30,000 children and adults in the United States. CF clogs the lungs and leads to life-threatening lung infections. CF obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. (Click here to learn more about CF)
Our goal is to continue holding numerous events to support the ongoing research done by the Cystic Fibrosis Foundation as well as support local CF Clinics and CF families. The Cystic Fibrosis community needs your help. Colin and Sean need your help.
Help make CF stand for Cure Found!
The Randles Boys Foundation raises funds in an attempt to support three different aspects of CF - the research, the facilities and the families of patients. We believe that this triple front approach to fighting CF is crucial to the wellbeing of all suffering with CF.
We strongly support the research efforts of the Cystic Fibrosis Foundation. The CFF is regularly recognized nationally for their successful research programs and remarkable financial responsibility to the generous people who support them. The CFF has developed numerous medications that have immediately impacted patients of CF and their drug pipeline is continually pumping out new medication and clinical studies. The Randles Boys have personally been helped by these advancements and desperately want to see what comes next. This research costs money. Because CF only affects approximately 30,000 US patients, it is often considered the “orphan disease”. The CFF does not receive the same assistance from the federal government as most “popular” diseases so we need to fund the research ourselves. It should be noted however that the research done by the CFF has assisted many with other conditions such as diabetes.
There are few recognized CF Clinics in the US. These clinics are the first point of contact for young patients and their families. A CF patient will have routine visits to their CF Clinic and their parents will have what seems like a direct line to the people who truly are trying to save the lives of our children. The Randles Boys Foundation will use some of the funds raised to assist the Bristol-Myers Squibb Children’s Hospital at Robert Wood Johnson University Hospital. We will assist the staff by helping to provide a more entertaining and enjoyable setting for the young patients while also helping to purchase equipment and supplies that would otherwise be unavailable to all patients.
In recent years we have learned of many families that struggle with the high cost of keeping their young CF children healthy. The Randles Boys Foundation will assist these families by helping cover a portion of high prescription and equipment costs.