About Us
The Randles Boys Foundation is a nonprofit organization dedicated to raising funds and awareness to help find a cure for Cystic Fibrosis (CF). What started as a mission inspired by Colin and Sean Randles has grown into a commitment to supporting the CF community and making a lasting impact for individuals and families affected by this disease.
Cystic Fibrosis is an inherited chronic disease that primarily affects the lungs and digestive system. CF causes thick mucus to build up in the lungs, leading to serious and potentially life-threatening infections, while also affecting the pancreas and the body's ability to properly digest and absorb nutrients.
Our mission is to continue hosting fundraising events and building partnerships that support ongoing Cystic Fibrosis research, local CF clinics, and families living with CF. Through the generosity of our supporters, we are committed to creating greater awareness, providing meaningful support, and helping advance the search for a cure.
The CF community needs your help. Together, we can make a difference.
Help make CF stand for Cure Found!
Who We Support
The Randles Boys Foundation raises funds in an attempt to support three different aspects of CF - the research, the facilities and the families of patients. We believe that this triple front approach to fighting CF is crucial to the wellbeing of all suffering with CF.
Research
We strongly support the research efforts of the Cystic Fibrosis Foundation. The CFF is regularly recognized nationally for their successful research programs and remarkable financial responsibility to the generous people who support them. The CFF has developed numerous medications that have immediately impacted patients of CF and their drug pipeline is continually pumping out new medication and clinical studies. The Randles Boys have personally been helped by these advancements and desperately want to see what comes next. This research costs money. Because CF only affects approximately 40,000 US patients, it is often considered the “orphan disease”. The CFF does not receive the same assistance from the federal government as most “popular” diseases so we need to fund the research ourselves. It should be noted however that the research done by the CFF has assisted many with other conditions such as diabetes.
Cystic Fibrosis Clinics
There are few recognized CF Clinics in the US. These clinics are the first point of contact for young patients and their families. A CF patient will have routine visits to their CF Clinic and their parents will have what seems like a direct line to the people who truly are trying to save the lives of our children. The Randles Boys Foundation will use some of the funds raised to assist the Bristol-Myers Squibb Children’s Hospital at Robert Wood Johnson University Hospital and hospitals in the Philadelphia area. We will assist the staff by helping to provide a more entertaining and enjoyable setting for the young patients while also helping to purchase equipment and supplies that would otherwise be unavailable to all patients.
Local Assistance
In recent years we have learned of many families that struggle with the high cost of keeping their young CF children healthy. The Randles Boys Foundation will assist these families by helping cover a portion of high prescription and equipment costs.
